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    Last Updated: 10/30/2025

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    MediFind found 21 doctor with experience in Danon Disease near Ann Arbor, MI. Of these, 17 are Experienced and 4 are Advanced.

    Location
    LocationClose
    21 providers found
      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Danon Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.

      Advanced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Thor Thorsson is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Urdu
      Accepting New Patients

      Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ahmad is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Propionic Acidemia, Von Gierke Disease, and Classic Galactosemia. Dr. Ahmad is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.

      Keith D. Aaronson
      Experienced in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology
      Experienced in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology

      Regents Of The University Of Michigan

      375 Briarwood Cir, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Keith Aaronson is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist in Ann Arbor, Michigan. Dr. Aaronson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Pulmonary Edema, Heart Transplant, and Atherectomy. Dr. Aaronson is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Adam Dorfman is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Dorfman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Tetralogy of Fallot, Double Discordia, Transposition of the Great Arteries, and Hypoplastic Left Heart Syndrome (HLHS).

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Martin Lapage is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Lapage is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Block, Arrhythmias, Congenital Heart Disease (CHD), Cardiac Ablation, and Heart Transplant.

      Experienced in Danon Disease
      Pediatrics | Medical Genetics
      Experienced in Danon Disease
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Experienced in Danon Disease
      Neurology
      Experienced in Danon Disease
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ann Little is a Neurologist in Ann Arbor, Michigan. Dr. Little is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Inclusion Body Myositis, Polymyositis, Myasthenia Gravis, Transmyocardial Revascularization, and Stent Placement.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Sara Sadat-Hossieny is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sadat-Hossieny has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Transposition of the Great Arteries, Tetralogy of Fallot, and Heart Transplant. Dr. Sadat-Hossieny is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Sara Pasquali is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pasquali is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Coarctation of the Aorta, Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Heart Transplant, and Aortic Valve Replacement.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sonal Owens is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Owens is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Congenital Heart Disease (CHD), and Coarctation of the Aorta. Dr. Owens is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Sowmya Balasubramanian is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Balasubramanian is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Double Discordia, Patent Foramen Ovale Repair, and Aneurysm Repair.

      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (13.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Shea is a Cardiologist in Canton, Michigan. Dr. Shea is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Heart Disease, Atherosclerosis, Angina, Cardiac Ablation, and Pacemaker Implantation. Dr. Shea is currently accepting new patients.

      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, Umhs Canton Health Center, 
      Canton, MI 
       (13.2 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English, Hindi, Tamil
      Accepting New Patients
      Offers Telehealth

      Supriya Shore is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Canton, Michigan. Dr. Shore has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure, Pulmonary Edema, Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Shore is currently accepting new patients.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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